Author Archives: giantfossilizedarmadillo

In which I end up with bark in inconvenient places

I’m back! Well, I’ve been back for a few days now, but after getting home around midnight on Wednesday I had to spend all day Thursday at college, and yesterday I pretty much just lay around being knackered. I STILL have all sorts of things on my ‘to-blog’ list, but for now I give you pretty pictures of Scotland. You’ll have to wait until the end to find out about the bark, unless of course you skip to the end now so you can laugh at me in the comments.

Day one: St Andrews. A beautiful little university city on the east coast, from the top of a very tall cathedral tower, which we reached via spiral staircase. I HATE SPIRAL STAIRCASES. Great view though.

We visited the ruined castle

…and explored the mine and countermine dug under the walls during a siege in the 16th Century. We walked (erm…maybe a generous term given the height of the tunnels) as far along these as possible, and my camera behaved well enough in the low light for me to take this:

Did I ever mention that I used to be cripplingly, couldn’t-leave-the-house-style agoraphobic and claustrophobic? Ahem…

St Andrews also has some beautiful beaches, with the West Sands stretching right to the horizon:

The day was completed with (dairy free) pizza and red wine from Pizza Express. They are so helpful to people with allergies! No pictures of that though. What do you think this is, a food blog? I’ve never been organised enough for that even when I used to be obsessive enough for it :P

On day two Audrey drove us to Falkirk for some geekery. I give you the Falkirk Wheel!

I got SO overly enthusiastic about this, being a former physics student :D it’s basically a lifting device for canal barges as there’s a 35 metre drop between the top and bottom which would otherwise require more than ten locks to connect. It’s in mid-rotation here. You’d better believe I paid up for a quick boat trip:

About to fall off the edge of the world? Eek! Nice scenery though, if this was the last thing I was ever going to see!

And an obligatory, slightly clichéd arty photo:

Audrey’s sunglasses and eyebrow, plus Wheel, now in upright position. I was very pleased with myself :P

Our plan for day three was slightly ambitious, as we were trying to fit a quick trip to Loch Lomond in before driving half way up a mountain to play on zip wires. But before that, here are the ducks I fed the crusts from my sandwiches to, because I’m mature like that:

Bless :D

We got to Loch Lomond around half twelve, and had to leave again an hour later to get to our second destination on time. We still found time to climb up a big hill for the best views.

Carpet of bluebells on the way up:

SCENERY!!!eleventy

I kind of want to post every single photo I took at Loch Lomond because it was SO gorgeous, but that might lead to me wanting to post every single photo I took throughout the whole trip…and I exceeded 800 :/ so maybe not. Don’t let those clouds fool you by the way – they never reached us, the weather was beautiful the whole time. I got sunburned!

After descending the rather big hill we drove on to Aberfoyle, where I concentrated very hard on the safety briefing at Go Ape, before playing in the tree tops for a couple of hours. Audrey took some pictures of me looking like I felt:

I am genuinely grinning rather than assuming an expression of pseudo-mock-horror (scared but laughing at myself for being scared? Something like that) in this picture because I’m so damned pleased with myself for crossing one of the longest zip wires in the UK – 426 metres over a mountain valley. Whoo! Being quite a small person, on the longest of the eight zip wires on the course I had to be ever so slightly rescued by an instructor pulling the wire more taut so I’d travel faster and not get stranded, and I stopped just about at the point I could touch the bark (which made the ground softer, but rather spiky) with my toes. They had a lower weight limit which I wouldn’t have come anywhere near when I was ill, which made me very grateful to be there and in my present physical condition. I am terrified of heights, but I wouldn’t have missed that for the world! One of the perks of recovery people wouldn’t necessarily think of – having the privilege of gliding through a Scottish forest and ending up with bark in your knickers…

There are already 15 pictures in this post, so I will stop there and do the last couple of days tomorrow.

Now you see her, now you don’t

I have things to say, but apparently no time in which to say them. I’ve been working hard on my last couple of assignments for this year at college and in a couple of hours I’m off to Scotland for a few days with Audrey.

Howeverrr, I do have one bit of good news…

I got the okay to start my placement, and I have a starting date! I’m hopefully going to be meeting my first client on Tuesday July 17th.

I don’t know whether *yay* or *headless chicken* is the response I feel most drawn to here. Possibly more of a headless yay?!

Family outing

The Cass Identity Model states that there are six stages to identifying and coming out as one or more of LGBTQ, namely identity confusion, comparison, tolerance, acceptance, pride and synthesis. As with all linear models, there are problems. People like me are problems. I had my first (heterosexual) kiss at thirteen and was so unmoved that I immediately decided I was gay. But I wasn’t about to go and tell the whole world because I was already being bullied to the limit of my tolerance and was in fact dangerously close to a psychotic break – I believed that my teachers had implanted electronic bugs on me and were sitting in the staff room laughing at all the stupid things I said, amongst other pretty dodgy and illogical scenarios. Other than the boy from another school who had thought I was pretty enough to kiss, I was quite convinced that it didn’t matter who I fancied, because there was zero chance of anybody with functioning eyes finding me attractive. Girls, boys, what did it matter? I was toxic to my peers.

At eighteen I was well enough for it to boil to the surface again. I lost my virginity to a female friend quite spontaneously and happily when I’d backed away (sometimes literally ran away) from numerous similar opportunities with high school boyfriends. Then, of course, I confided in a new friend from college who I knew was bisexual and had experienced mental health problems in her adolescence. I thought she would understand, and that she was a safe person to practice coming out to. I didn’t know I was talking to a predator who just wanted a vulnerable fucked up teenager to take home to her boyfriend, so they could use me as they saw fit with no fear of me reporting them to the police. I was far too scared.

I’ve found it interesting to note the parallels between coming out and assimilating the identity of being a survivor of sexual violence. I remember the confusion almost ten years ago – was it my fault? Was what happened really rape? Do semantics matter? I remember the stage of comparison, and the utter relief when I found that my experiences both of the rape and the subsequent symptoms of PTSD were common among survivors. I remember first tolerating and then accepting the fact that I had been raped. That’s a lot harder than it sounds. You’d think people would rush to absolve themselves of guilt, to argue that the perpetrator held all the power and control and that they had no chance of escaping. What I’ve found from my own experience and that of friends is that we are all too quick to blame ourselves. I think for me, it was because accepting that my life had been completely torn apart through no fault of my own was too devastating to contemplate. It was easier to blame myself, because I could live with the ideas that first of all, I was responsible for my own destruction, and secondly, that I could stop it from happening again by just not being so fucking naive. Finally accepting that I was raped, that those responsible knew exactly what they were doing and that I didn’t have a hope in hell of escaping that situation was truly devastating. But I got there. I accept that now, because the evidence points overwhelmingly to those facts and more than that, I feel the truth in that conclusion. And once I got there, I started to take pride in the fact that I had survived. I know now, I did everything I could. I put their alcopops under the bed, I told them I just felt sick when I was shaking with fear, I pushed them away even though they brought out guns and stories of violence, and I eventually – after hours and hours of terror and pain – let them do what they would, because I genuinely believed they would kill me if I didn’t. And finally, assimilation. When I no longer thought of the rape every day, and no longer thought of myself as a survivor first and the rest of my life history second. It is just one of many parts, now.

I wanted to share this with you. It’s from a book I read a couple of months ago, in which a mother recounted the story of when her daughter came to tell her that her son was gay.

“Then Dana told us that Ben was in the neighbourhood and he was going to drive by the house. We live in a big two-story white house with black shutters and white columns. Dana had promised to give Ben a signal of how we took the news: if we had taken the news really badly, she was to get the hell out of Dodge, and he’d see that her car was out of the driveway, but if we received the news fairly well, she was supposed to put a light on in his bedroom window. Kind of like tie a yellow ribbon. 

When I found that out, I just screamed. I couldn’t stand the thought of Ben thinking that we wouldn’t accept him. I said “Quick, help me”, and we turned on every light in the house – even those in the closets. When Ben drove up, even the lights in the back workshop were on.” 

Sometimes I wish I’d had the support and the role models around to realise that my first thoughts about my sexuality at age 13 were correct. Then I think that actually, my parents would never have coped back then, so close to their fundamentalist religious upbringings. In 2012, the fact of my being in a homosexual relationship seems to be almost incidental, and both my parents have been so supportive and accepting. And as to the quote – I just wish all the world thought that way. Maybe then there wouldn’t be so many stories like this.

Missing the punchline

I hate the term “frape”, defined as the changing of another person’s Facebook status or profile without their knowledge. This is a frustrating thing to hate for a couple of reasons, the most obvious being how commonly used it is. The other main reason it frustrates me is because it’s not technically a misuse of the word rape, which aside from the legal definition more generally means to violate, plunder or otherwise despoil. It’s not like I can get my pedant’s anonymous hat on and whinge about the youth of today and their flimsy grasp of the English language, like the way some people use “alas” in a positive context, say “literally” when they mean figuratively or can’t seem to stop themselves inserting “like” into every other sentence. Even if this was the case I probably wouldn’t complain on those grounds, because I’m only twenty seven and it would make me feel far too old to be whinging about the youth of today.

It makes me feel uneasy because Facebook is such a trivial thing, and although I might just be over sensitive to the subject, attaching the word “rape” to a faked status update seems indicative of a much wider issue: rape jokes, maybe rape culture itself. Another example I could use is twitter trends – most recently #ReplaceBandNamesWithRape (#RapeDirection apparently being the most popular), with an almost identical one centred around movie names and paedophiles a week or two previously. Someone I love and who I know has several friends who have been subjected to sexual violence joined in with that one, which confuses me. From my offline life I could tell you about the lady at college who runs the little coffee shop. I walked into the canteen last week in the middle of her telling a group of my friends about how the college make her wear a panic alarm, and how this was clearly ridiculous because “chance would be a fine thing, I could walk down all the dark streets I like and not get any action – they’re more likely to try it on with the door than me!”. All my friends – all these future counsellors – laughed like it was the funniest thing they had heard all day.

So maybe I’m humourless, or maybe I’m taking all of this too seriously because of my own experiences and just need to sort my shit out. But to me it seems like just a few small steps from treating rape in a lighthearted manner to this sort of thing: Rape culture in up to 140 characters.

My theory is and has always been that victim blaming and certain types of humour come from people not wanting to believe that it could happen to them or their loved ones. If rape is funny, if rapists are to be respected and if all female survivors are stupid sluts and all male survivors are gay then some sort of illusion of control can exist: it won’t happen to me because I’m not like that. It wouldn’t matter if a footballer took advantage of me because he’s athletic and attractive, and who would say no? It’s only natural for young men to want to rape a pretty girl who wears a short skirt – she’s teasing them. Lesbians are just women who need fucking by the right man. Men can’t be abused by women because they are always stronger, and why would any man say no to sex anyway? And so on.

From Rape Crisis:

Around 21% of girls and 11% of boys experience some form of child sexual abuse. 23% of women and 3% of men experience sexual assault as an adult. 5% of women and 0.4% of men experience rape. (Cross Government Action Plan on Sexual Violence and Abuse, www.homeoffice.gov.uk/documents/ Sexual-violence-action-plan).

Black humour isn’t such a bad thing – I know I’ve made some fairly inappropriate comments to lighten crappy situations at times, and I get why health professionals are particularly well known for it. But there’s a big difference between people in stressful situations trying to cope with them as best they can and using other peoples’ pain for entertainment value. It makes me sad that rape jokes are so common place that many otherwise intelligent, sensible, kind people don’t bat an eyelid in their presence. My relatives, my friends on twitter, my fellow counselling students, other adults and parents I know – it just sort of washes over them. It’s that sort of thing which makes our culture feel toxic to me. That it goes by unnoticed and unremarked upon. I wanted to mark it myself.

Down with PTSD

Way back in the depths of November I approached a local charity which offers free counselling for survivors of rape and abuse. At the time I was assessed I was mostly concerned with the impact of the rape on my sexuality, but while I was on the waiting list I worked through that one by myself. When I finally got an appointment about six weeks ago I considered saying that I wasn’t interested any longer, but with my placement coming up I decided that it would be a good idea to go along anyway. I wouldn’t want some previously unexplored detail to bring on a flashback in the middle of a session with a client who had been through sexual violence. Getting a check up on my own mental health is the responsible thing to do when very shortly – possibly even by the end of this month – I will be face to face with my first client (have I mentioned before that this thought is FUCKING TERRIFYING, capitals entirely necessary? Yes? Okay, carry on).

It’s been an interesting experience so far. My standards are quite high because I’ve had some really awesome therapists in the past (as well as some impressively crappy ones), but luckily for me this woman is one of the good guys and I clicked with her straight away. There have been a few surprises. To begin with, whenever I’ve seen a therapist in the past it’s always been during a time of crisis, and I’ve depended on that support really heavily. This time I’m just making sure I’m safe to practice, and I don’t feel strongly either way about attending – I don’t count down the hours between sessions, but I don’t lie in bed thinking of creative excuses for cancelling either. I like my counsellor but I’m not attached. I think this is because my social life is so much better now – I have my partner and some friends I can talk to, so I don’t really need a professional for the more day to day stuff. Secondly, although I’ve been talking about the most traumatic event I’ve ever been through, it’s not affecting me that much outside of my sessions. Previously whenever I tried discussing being raped I always either fell into a depressive hole or started self destructing in some way – which is why I never really got all the way through treatment for my PTSD. I’ve done it in fits and starts, backing off whenever it got too intense, and I have made a lot of progress that way, but I am aware that there are some loose ends.

On the plus side, I can’t remember the last time I had a flashback, nightmares are very rare and the majority of the situations I associated with the rape and therefore avoided have been defused. I can travel in the back of two door cars, walk through my house in the dark without having a panic attack, stay overnight in other peoples houses, sleep without the light on, watch TV dramas with rape scenes in and so on without any ill effects. I don’t think about being raped on a daily basis and being a survivor is part of my history but not the whole of my identity. On the minus, I still have a disaster movie inside my head. Whatever I’m doing, every few minutes my brain will come up with some terribly vivid and disturbing image of me dying. For example, while I was walking to my session this morning I *saw* a car skid off the road and smash into me. Riding on the metro I imagine the rail bridges collapsing. During thunderstorms I’m convinced I’m about to be hit by lightning. When I hear the post landing on the doormat I actually get the feeling of falling down the stairs, to the extent that I sometimes catch myself throwing my arms out, even if I’m lying in bed at the time. I could go on for hours, but basically my brain thinks the world is a very dangerous place, and likes to inform me of this far too frequently for my liking. Although I was a fairly morbid and fucked up teenager before I was raped, I didn’t have “Top 100 Goriest Ways to Die!!!!!” running through my mind almost constantly, so I subscribe this to PTSD. I ignore it to the best of my abilities, but I would rather use that energy on something a bit more fun.

Thinking about the myriad of other reasons I’ve sought out therapy before, finding that currently my biggest issue is an occasionally distressing but generally tolerable bunch of intrusive thoughts is a sign of progress I’m happy to take. All the more head space for me to use in focusing on finishing my final college assignments for the year and starting my placement…

(eek!)

Photograph of the week (30)

So I know I’m posting this on a Tuesday, and also that these are photographs from Easter weekend, thus negating the whole point of photograph of the *week*, but the backlog was getting a bit overwhelming so I thought I’d just shove a whole load of nice pictures on my blog :P

POTW, 16th – 22nd April

I took dozens of pictures of spring in Jesmond Dene, and this is probably my favourite. Why? Erm…the composition, the focus, the cute little furry flower cases? Something along those lines!

A pink bluebell! Is that even a thing? (edit – according to various gardening forums, pink bluebells are either Spanish bluebells or random genetic mutations of English ones which occur in the wild every so often. They are pretty though!)

This is a newborn Horse Chestnut tree. I guess the local kids missed a few conkers last autumn :)

Beech leaves often stay stuck to the branches throughout autumn and winter, and don’t fall off until new leaves push them out of the way in the spring.

No clue what this is, but it was such a pretty colour!

I love catching unfurling leaves…

…and I didn’t realise until I uploaded this one that I’d caught some strands of spider web too!

Yellow flowers in front of the bridge.

A random bloke reading a book on a stone in the middle of the river. As you do.

And finally, from the city rather than the dene, an art installation which popped up for a few weeks near the library:

Certainly made me do a double take the first time I walked past it!

Moving on

Good news: I have new hair. It is awesome.

And here is the build up to the potentially not-so-good news, depending on whether you think I am as awesome as my hair or are not really all that bothered. I was at college yesterday, and we had a discussion in class about compassion fatigue and burn out. This is definitely something I’ve experienced before, even as recently as the beginning of the year when I had to leave my job because I was exhausted and experiencing the signs of incipient nervous breakdown. I really don’t want to go through that again, partly because it sucked and took a long time to recover from, and partly because it would suck even more in the context of being a counsellor (or a trainee on placement) with a case load of clients. I mean, I could repeat those life long patterns of putting everybody else’s needs before my own again when I started on placement – but how long would I last before I had to go off sick, disrupting half a dozen therapeutic relationships in the process? I won’t ever be an effective counsellor if I don’t take care of myself first, I’ll just end up dropping out of college again and having to find yet another career path.

One of the things we talked about at college was having a life outside of helping others. As the dude on the video we watched said: when you dedicate your life to helping people recover from trauma you deal with trauma at work, you read about trauma in journals and newspapers, you go to conferences about trauma, you talk about trauma with your colleagues, and you watch movies which deal with traumatic themes. All of a sudden I could imagine myself doing just that: eating, breathing and sleeping eating disorders, until I was drowning in them. Disturbing mental image ahoy.

I’ve been blogging for over three years now, and in that time there have been people who have recovered alongside me, and others who have remained unwell. Those who have made steps towards recovery have fallen into two groups: people who leave their mental health history behind almost completely – socially, academically and vocationally – and others who decide to put their experience to good use. I have always believed that it’s a very bad idea to head down that sort of career path unless you’re about as recovered as you can possibly imagine, and I thought a lot about whether being a counsellor was the right move for me before I applied for this degree. I still believe it was a good decision because I’ve always wanted to help other people professionally, I have such a ridiculous amount of knowledge about mental health and illness and I can’t imagine doing a career which my head and heart weren’t in 100% – I am someone who needs a vocation, not a job. But if I want to make this work I’m going to have to make some changes.

I don’t want to get rid of this blog. I really don’t. In these last three years I’ve learned so much about myself and the world. I started out feeling almost frozen in time at the age my mental health began to deteriorate – around about eleven years old. I had dropped out of my education a fairly impressive five times, was utterly dependent on the mental health services for survival, my physical health was failing rapidly, I had no social life and no idea of how to function as an adult. I didn’t know who I was beyond my diagnoses, or if the person I would have been without them even still existed underneath all that crap. Some of the earliest and greatest benefits I got from recovery were self respect, pride and trust in myself as I learnt to cope with change without imploding. Things as basic as teaching myself distress tolerance and self soothing skills made the world of difference, because before that I’d always been dependent on others to rescue me – or on my eating disorder to make me numb. The next step was learning to trust my body to keep itself healthy without attempting to micromanage my weight and intake, and that has helped me maintain my current (healthy) weight for the last two years now, almost without trying except in times of stress. In trying to work out who I was I sought out information on the politics of identity, and without really intending to became rather well versed in contemporary thinking around gender, LGBT issues and disability. I met new and interesting friends and allies, discovered I was a slightly self-conscious bleeding hearted liberal, became unafraid to share my experiences with others (in local schools, with friends and family, at college, on Facebook…) if it seemed like it might do some good, found that I still had talents I thought had been lost years ago and that David Tennant was my Doctor. Every time I thought the upheaval was over, I found another area of my life that needed some drastic remodelling. I became almost recklessly fearless in the face of change, even if I needed to drink an entire bottle of mojito and make drunken apple cake to cope with coming out to my mum.

I can’t, or won’t, delete my record of all of this. Maybe blogging is self indulgent and maybe none of this has the slightest importance to anybody on the planet other than myself, but I’m not taking up all that much space over here. What I am going to do to keep my sanity intact as I start working with people face to face is take a step back from the online ED community as a whole. I’ve left all but one of my ED-related Facebook groups, culled my list of Twitter followings and completely deleted google reader. Many of my friends post their blog updates on Facebook anyway, and I can keep in contact with those who don’t through messaging and email. I’m not going to say goodbye to everyone I know who has an eating disorder, or refuse to talk about them altogether – just decrease my online saturation of the subject. I’m not stopping blogging either, just spending less time on eating disorders, and more on long walks with my girlfriend and my camera. More enquiries to local amateur dramatics groups and choirs. More reading on the politics of identity, since I apparently find that so fascinating these days. More fiction. More cooking of elaborate dinners which take ten minutes to eat and thirty to wash up afterwards. More fun.

No more burning out. I have things to do.

Thank you for the music

On Saturday morning I heard that my old singing teacher Joanne had died the night before. It’s been over ten years since I last saw her, so I didn’t think I was particularly affected beyond a vague sadness to begin with. What’s more, the last time I saw her I screamed at her in public, so I didn’t really want to relive that bit of behaviour again. On Monday I couldn’t concentrate on my college assignment (due in today! Finished it eventually) and started writing a post about Jo instead. About half way through I realised that writing about it wasn’t going to make it better, so I gave up and cried on Audrey instead. I’ve always been the poster girl for delayed reaction grief, but there seems to be a much shorter lag between the fact and the consequence these days, which I suppose is good.

I still want to write a bit about Jo here. I met her when I started getting  involved in some of the amateur dramatics societies local to my home town when I was ten. She was a retired opera singer who coached anyone with a singing part in the productions, and also organised and led rehearsals for concerts in between the seasonal plays and pantomimes. When she broke away from the main group about eighteen months later I followed her, becoming one of the original members of her new youth choir. We were actually pretty good – I think the biggest and best thing we ever took part in was performing at Disneyland Paris two years running, but we always had lovely feedback from our concerts, whether in Salisbury cathedral or the little town hall in the coastal village where she lived. I was a member of the choir for five or six years, from the age of eleven until I was nearly seventeen.

I loved being on stage when I was younger, which is weird given how pathologically self conscious I was – I mean, this is the same girl who often couldn’t bring herself to buy things from the shops in town because she was convinced the person behind the till was laughing at how ugly she was. On stage, singing in front of hundreds of people. I was a conundrum, certainly. But I didn’t just belong to the choir because I loved performing so much. That choir was my lifeline throughout most of my membership. When I joined I was a badly bullied and suicidal eleven year old, and over the next few years my eating disorder and self harm gradually crept in and stole away any remaining quality of life. I held on to that choir until the last possible minute before everything really fell apart in 2001.

To begin with it was just a safe, welcoming, inclusive place to go on a Thursday evening. I felt shy around the others and of course there was some obligatory teenage cliquey behaviour, but they were kind to me – something I had no experience of at school. The lower my mood dropped and the more desperation I felt in the rest of my life, the more I clung to the two hours a week when I was surrounded by people who seemed to like and respect me. There were times when choir felt like therapy did later on – there were a few girls and an ex-teacher of mine who helped out there that I could talk to, and sometimes the noise in my head would get so loud and overpowering that I’d have to get the attention of one of them and chat for a bit. I was very aware that these people were not mental health professionals and were there to have fun, not to counsel my batty, frightened self, but I had no other outlet at the time. I knew my mum wanted me to talk to her about what was going on but for some reason it felt overwhelmingly threatening to do so, like I would be exposing some terrible, selfish weakness which would cause her to hate me. Somehow it felt safer to talk to people who weren’t so emotionally involved. Before long, I was virtually living week to week for choir, and counting down the hours in between Thursdays.

When I was about fourteen Jo started giving me private singing lessons. My craziness managed to interfere with this too. My dad would pick me up from the school concert band rehearsal at 5pm on a Wednesday and get me to Jo’s house for 5.30. Because I hadn’t had time to breathe in between school, band and singing, Jo would make my sister and I dinner before we got there. I would eat in her dining room while my sister sang for the first half an hour, then she would have dinner while I sang, and then we’d switch over again for another half hour each. This would have been a wonderful arrangement if not for my eating disorder. Jo was thin as a rake but made the most highly calorific meals known to mankind because she had malabsorption problems from a digestive disorder. I was torn by guilt in either direction: whether I ate Jo’s food and accepted the full wrath of the eating disorder or gave in to the latter and felt awful for throwing away what Jo had obviously gone to some trouble to prepare. The outcome differed from week to week. Sometimes I would eat my dinner with a minimum of anxiety and be pleasantly surprised by how much better my voice was with some calories behind it. Other weeks I would put it in plastic bags in my school rucksack and later Jo would ask me if I was tired or under stress from school exams because I was “lacking some oomph, darling!”. On one memorable occasion I forgot my plastic sandwich bags and ended up having to store pasta with cheese sauce and peas in my pencil case, which I then forgot to empty out and had to dash to the school toilets the next morning to do so. Opening that in front of the class would not have been my greatest moment ever…

Despite my inconsistent nutrition and precarious mental state I still managed to improve slowly, and I took part both years we sang at Disneyland, age fourteen and fifteen. The first year requires Dickens’ (those of you who get these posts emailed will have spotted the deliberate mistake in the first draft :P ) line about the best and worst of times to adequately describe it. One of my good friends had just died and I was utterly grief-stricken, but unable to cry. Jo had just poached a boy from the school’s production of West Side Story to join the choir and he reminded me so much of my poor dead friend that I fell instantly and hopelessly in love with him. This was a bit of a shock since I had previously only had crushes on women, so I was simultaneously confused about this, devastated about my friend and overjoyed that I apparently wasn’t as gay as I’d thought I was, without really linking the three in my head. Plus I was barely eating, rarely sleeping and absolutely petrified about wearing a short-sleeved costume on stage, in front of my parents, who didn’t yet know about my self harm. I was trying and failing to deal with all of this on my own, and feeling as if I was a hair’s breadth from losing my mind. I tried to talk to the nice ex-teacher who still helped out, and she was a great listener but I felt so guilty about taking up her time and so terrified that she would call me attention seeking or melodramatic, as the teachers at school had the year before when I had finally broken down over being bullied. I was jealous when she paid the other girls attention, and hated myself for what I saw as being so dependent and weird. I know it sounds like the choir was the source of half my problems at that point, but really I think it just gave me a context. Even without the choir my friend would still have been dead, I would still have been alone and desperate for help. All the choir provided me with was hope that things could change – that I might fall in love, have friends, be listened to and understood. That made me feel almost worse than being utterly alone and having no hope, but I wouldn’t have let go of it for the world.

I'm on the floor, second to the left. Jo is next to the girl holding the enormous Pooh. You know what I mean.

I was ready and raring to go the next summer, now with my younger sister and brother joining in with the Disneyland preparations, but this is where things started going a bit awry, as if my general craziness hadn’t been the source of enough awry-ness already. Two of the most popular girls in the choir fell out, and the majority of the choir sided with one of them. Remembering how awful being bullied had been, I made an effort to be nice to the other girl, and found myself being ostracised for it. My own best friend at choir had just found herself a boyfriend, and spent ninety-nine percent of the summer kissing him. We were young teenage girls (the boys wisely didn’t get involved), so of course there was going to be drama and catfights, but I couldn’t see the bigger picture back then and I couldn’t trust that it was going to blow over. In my head this was the ruin of my one safe place, and now everyone hated me just like they had done at school, and I KNEW something was wrong with me, I knew I was incapable of keeping friends, I knew I was a worthless piece of crap, why had I ever believed otherwise? I carried on through the summer, utterly miserable, reluctant to let go of the faint hope that things might improve. Finally, while we were away in France, the two fighting girls made up under the influence of cheap French supermarket vodka, my (good, Catholic) best friend got wasted and lay on the hotel corridor shouting for her boyfriend to come and f*ck her, which led to much hilarity and female bonding, my mum (who had come along to accompany my little brother) laughed at my hangover the next morning and my brother set fire to his thumb while trying to light a candle for my grandfather at Notre Dame. All in all it was a pretty good trip, and certainly a memorable one, but the damage had been done.

The next year – 2001 – we were supposed to be going to Spain rather than Disneyland. I, at sixteen years old, had been put on antidepressants for the first time a couple of months previously, and was completely mental in a way which very much surpassed all prior mentalness. I was hypomanic and self destructive and self harming badly enough to be attending accident and emergency for stitches every now and again. I decided that I needed stability this summer so shouldn’t go to Spain. I think really I was just terrified of the previous summer’s drama being repeated, and no longer felt like my beloved choir was a safe haven. One day early in the summer holidays I was walking along the seafront and found them setting up for a pre-Spain concert. I was devastated at being left out, although quite aware that it was all my own fault, as I hadn’t given Jo a straight answer about what the hell I was up to and why. She tried to make “show must go on” noises at me and I got upset. She told me in frustration that I was lucky, that there was a long waiting list of young people who wanted to have singing lessons with her and come on our foreign summer concerts, and I screamed at her that if this was the case, she should give my place to someone else, because I really wasn’t feeling very lucky.

At that time in June 2001 I had finished my GCSEs, getting all A and A* grades apart from my “shameful” B in maths. I swept the local music festival, winning every one of the nine classes I entered and getting a special award for being the most promising young recorder player – which I know sounds a little unexciting, but for some reason Swanage was a hive of young recorder players, some of whom were really fantastic. I was the understudy to the lead in the musical my ballet company was producing, which was a massive deal to me since I had always felt inadequate and clumsy at ballet. I had the chance to go to Spain with the choir, and my singing voice was the best it had ever been. My parents noticed the difference, Jo noticed the difference and the judges at the music festival certainly noticed. By the end of July I had left my recorder group, abandoned my ballet company after a minor spat with the director (who, to put this into context, was the most extreme and demanding perfectionist I’ve ever met and fought with most members of her cast on a daily basis – I was just too vulnerable to cope with her any more) and shouted at Joanne on the promenade of Swanage bay.

My recorder tutor had taught me since I was nine, and I feel a bit bad about suddenly disappearing on him, but at least I didn’t have a huge tantrum in the process – I just stopped turned up to group rehearsals. I’d been doing ballet since I was three, but the head of the company had a reputation for being overly critical, I had been on the receiving end of this many times before and I was far from the first person to storm out on her. I feel worse about Jo. She was a really lovely person. She greeted everyone with “hello, darling!”, had no time for her own physical ailments, and got involved with charities left right and centre, once hosting a concert for a group of children affected by Chernobyl who had come for a respite holiday to the UK for a month. She carefully brought out the potential of every child she came into contact with, and she so clearly enjoyed working with us. There was no indication that she felt it was a cut below her previous career as an opera star, which had been shortened by illness and relocations. She loved all of us quite openly. And yes, she was completely clueless about mental illness, believed in mind over matter for everything from low moods to travel sickness and quite possibly didn’t handle my breakdown in the most tactful manner. But she’d been dealing with my increasing craziness for six years at that point, and she just didn’t understand what I had to be depressed about, as – in her eyes – a talented, attractive and intelligent young woman with a every hope in the world for her future. With antidepressants turning my brain chemistry into a toxic cocktail I lost the ability to tolerate any further stress or pain, so when I found them on the seafront I just exploded without thinking, and was too ashamed and full of hurt pride to go back again afterwards. Instead, I abandoned all my extra-curricular activities, my friends from each of these and the few I had kept from school, and I hid away online for the rest of the summer, talking on a message board for people with eating disorders.

I’ve been hiding away online rather than making contact with the people around me for most of the last decade. So after I heard about Jo, I decided that was it, no more excessive internet usage, more socialising. In the past I’ve needed the internet as a crutch, particularly when I’ve been so unwell that I’ve not been able to leave the house for long periods of time. Even through last year I used my laptop for company, living in that house in Jarrow on my own. I can’t get my sixteen year old self back now, I can’t tell her to flush the medication, get some proper therapy (which I did shortly after, but too late to salvage any of this) and try to understand that people cannot read her mind. If I had believed that I deserved that place in my choir rather than being eternally apologetic for existing and overly grateful for any attention, I wouldn’t have felt as if it was all so tenuous, and could be snatched away in an instant. If I hadn’t felt it all slipping away I wouldn’t have reacted so defensively. There are far too many ifs in this paragraph. My original point was that I can’t go back a decade and do things differently, and to a certain extent I wouldn’t want to. Somehow, going through everything I did, I’ve ended up in this place where I like myself, I’m proud of who I am and what I’ve accomplished and I have a future I’m looking forward to. This is okay.

I just wish I could have apologised, explained and introduced Jo to the person I am today before she died last week. If not for her, I might not have survived long enough to get help.

Sex and carrots

Or: What I get up to when I have an essay due in next Thursday. Conversation from Facebook is reproduced exactly as it happened, except for the deletion of surnames and *likes* :P

*******

Charlotte shared My Prozac Moment’s photo.

M: That isn’t always a good thing you know!
3 hours ago

Katie: Does my hypomanic reaction to effexor count? It was horrible in ten thousand highly destructive and traumatising ways, but had completely the opposite effect on sex drive to the usually stated side effects of antidepressants. Basically turned me into a teenage boy for a couple of months, albeit an alternately suicidal and elated teenage boy in a mental hospital…

…too much information you say? Surely not :P
about an hour ago

Charlotte: Would I say that? Would I? I might think it but am WAY too polite to say it…..
40 minutes ago

Katie: ‎*evil laugh* :D
36 minutes ago

Cathy: Viagra. Some women take it, apparently.
35 minutes ago

Katie: Yeah, but that doesn’t make you sexier, it just increases blood flow to the genitals (I think). Since I have low blood pressure and get a bit wibbly any time I mess with vasodilators (alcohol, caffeine, beta blockers, even hot baths) I’d probably just pass out if I took it (I need that blood for my brain!), which wouldn’t be sexy at all. At least effexor gave me the illusion of extreme sexiness.
32 minutes ago

Charlotte: How does it increase blood flow to the genitals specifically? Why nowhere else? Why are we having a conversation about viagra on my wall? xx
31 minutes ago

M: Studies have shown V to be ineffective for women.
31 minutes ago

M:  Like I said……
30 minutes ago

Katie: Apparently it’s helpful for women on antidepressants (according to wiki, not the best source of reliable information), which almost brings the conversation round full circle! However, since I’ve not taken antidepressants since 2007 and have no need for viagra at the age of 27 I should probably stop yakking and get back to my essay…
29 minutes ago

Cathy: Can’t remember if Viagra is selective in terms of it’s vasodilatory effects. But it does lower blood pressure – like hot baths, alcohol etc.
28 minutes ago

Katie: There must be something special about viagra’s vasodilatory properties, otherwise men could just drink alcohol or have a hot bath to solve their erectile dysfunction…
27 minutes ago

M: Umm…different tissues respond differently….it is effective in most men. NOT proven effective in women…see PubMed not Wiki!
27 minutes ago

Charlotte: Hey snap on both no need for viagra at the age of…..er….47 and no anti-d’s since 2007, Katie. I have such low blood pressure anyway, I mustn’t take any and M says its ineffective and she is ALWAYS right. Off to put HWISO in hot bath with large gin and tonic……
27 minutes ago

Cathy: Oysters apparently increase sexiness, and one’s risk of contracting norovirus.
26 minutes ago

Katie: Because both passing out and puking ones guts up are incredibly sexy :D
26 minutes ago

Cathy: Somehow those two just don’t go together.
26 minutes ago

Charlotte: ‎Cathy – the oyster thing is purely about their resemblance to female genitalia
26 minutes ago

M: Go read Bonk, the lot of you!
25 minutes ago

Katie: Would orchids have the same effect then?
25 minutes ago

Charlotte: I have never eaten orchids but I do grow them
25 minutes ago

Katie: My sister does too. I always end up killing the poor things
24 minutes ago

Charlotte: I bet you overlove and water them Katie
24 minutes ago

Katie: Something like that! I’m trying to grow tomatoes, round carrots and sage at the moment. I don’t think any of those are related to sexiness, but I do make an amazing sage and butternut squash risotto!
23 minutes ago

Charlotte: Tomatoes need lots of water, sage is hardy as anything and carrots need deep soil
22 minutes ago

Cathy: My Dad was obsessed with orchids.
22 minutes ago

Charlotte: They are delicate, beautiful and difficult to nurture. I love them too.
21 minutes ago

Charlotte: I think M may be on to something with the book (Bonk)
19 minutes ago

Katie: These are ROUND carrots, Charlotte – they grow in 6 inches of soil and only grow to fit their surroundings. A bit like pythons and fish! I grew some a few years back, forgot to thin out the poor things and half of them came out marble size. I ate them anyway… (here)
19 minutes ago

Charlotte: As a farmer, that kind of upsets me. I like to think of carrots having enough soil to do what they do naturally, not be forced to grow the wrong way – Jeez, listen to me. Time for a glass of wine.
17 minutes ago

Katie: Aw! But they are a special carrot breed which are supposed to be round, I didn’t force them to end up spherical. It’s only the size which is influenced by the container, not the shape. I was sad that I forgot to thin them out so they weren’t bigger, but their roundness was entertaining!
15 minutes ago

Charlotte: FREE KATIE’S CARROTS! FREE KATIE’S CARROTS! I’ll rehome them…..
14 minutes ago

Katie: They’ll still be round! They were born that way!
14 minutes ago

Charlotte: That’s what they all say……
13 minutes ago

Charlotte: Laughing so hard here – we have done drugs, sex and food – is this the point where we run out of conversation?
12 minutes ago

Katie: You can’t force my carrots into your preconceived notions of what a carrot should look like. You should think carefully about what society has taught you about carrots. I know your experience dictates that carrots should be long and thin, but these carrots are genetically short and fat. You’ll put them all at risk of disordered eating if they hear you saying things like that!
11 minutes ago

Charlotte: Touche – I am rolling over and admitting defeat now, Katie – you are on a roll
10 minutes ago

Charlotte: Shall we both blog this conversation?
10 minutes ago

Katie: It’s college assignment deadline hypomania. Who needs effexor? And yes, I think it needs blogging :P
9 minutes ago

Charlotte: The carrot stuff? Or the whole thing?
9 minutes ago

Katie: Good question. Well, I’m not exactly concerned about my reputation, since my blog is based on the fact that I’m a bit mental, so whatever you think is best ;)
6 minutes ago

Charity shop hopping

I’m not really one for shopping. In the last six months I’ve only bought a cardigan (from the M&S outlet store near my house) and a pair of jeans (from Asda – classy!) after my other favourite pair developed an attractive hole in the crotch, so in general any shopping tends to be for function rather than fashion. Don’t get me wrong, there was a period in recovery where I had to update my wardrobe (Bigger sizes! Girly stuff! Items of clothing which were not baggy hoodies and jeans!) and I quite enjoyed that, but these days I live on a very low income and most of the money which doesn’t go on rent or bills is spent on food or the occasional cup of coffee in the city.

I rather enjoy being frugal with my money – it’s like a game, and has a similar (but far less destructive) appeal to my former compulsive calorie intake whittling. It’s a game with benefits too, because if I can shave a bit off my expenditure here and there for a number of months, eventually I end up in the position where I can afford to go on a one-off spending spree. A Katie-style spending spree, this is. And so it was this Saturday, when Audrey and I went to Gosforth, the “posh” part of Newcastle, where the upper middle classes donate their once-worn designer labels (along with the regular high street stuff) to the likes of Oxfam and Scope. In the charity shops on the high street we found everything from Primark to Versace.

I ended up with a Topshop corduroy jacket, some bright pink Next linen trousers, a really fun checked skirt (Occo? I don’t know who they are), two Jane Norman dresses and all three series of Black Books. Grand total, £36 – or $57 for my US friends. Not a lot for what I got, anyway! And what I got included an afternoon of fun, bargain hunting, pretty things AND the nice feeling of giving money to charity :D

Photos! I got Audrey to take them for me. I’m not going to bother putting up a picture of the linen trousers or DVDs because they are fairly self explanatory!

1. Fun skirt! Please excuse the socks. I must always wear socks, otherwise my hands and feet feel all wrong. I have been told by many many people that this is weird, but my nervous system doesn’t care :P

2. Topshop jacket. I have a green cord jacket already and thought this would go with the same clothes I wear the green one with. That was a convoluted sentence. Anyway, I really like this jacket, and for £5 I wasn’t about to leave it in the shop.

3. Dress number one! Is prettyyyyy :)

So I managed to take my socks off, but there is a fairly impressive bruise on my calf from walking into the oven door at home. Whoops!

4. Dress number two! Audrey did take a couple of photos prior to this one where I wasn’t flapping my arms around, but I thought this was funny and captured my general feeling of “eeeeeeeee how am I in possession of such a pretty thing!” I’m planning on wearing this dress to this ball.

The top of the dress. When Audrey took this picture I was all like “I can’t put my boobs on the internet!”, but it looked okay and not overly booby once cropped to within an inch of its life, so what the heck.

The skirt. SO pretty, even down to the little bit of lace at the bottom.

As you might have gathered, I’m feeling quite pleased with myself :D

Photograph of the week (29)

My camera hasn’t actually been out since my mum and sister were here two weekends ago – the horror! But since I have yet to put those pictures up, you’ll have to imagine I took these this week :P

Photograph of the week! Taken at Marsden Bay, in the thickest fog I’ve seen in a while:

I like this one because of the way the landscape just fades away in one direction, while abruptly disappearing (literally off the edge of the cliff) horizontally.

The cliff path is only separated from the edge by railings sporadically, and I confess I would be too scared to cycle along it in the fog for fear of going over – these guys are brave!

Marsden rock in the fog.

These next pictures came from THREE weekends ago (I am being a bit lax here, lol), when Audrey and I were at Tynemouth:

Part of the Priory – I love the Priory! I could take pictures of it for hours.

Stained glass windows reflected onto the wall of the chapel.

I just love the way this window is framed by the door :)

And finally, a game! Ten universe points to whoever guesses what this is first:

Audrey gets nothing because she was there when I took it :P

Counterintuitive

One of my favourite talks at EDIC was a sprint though the role of food in eating disorders by Professor Andrew Hill. He began by addressing the infamous cliché attached to eating disorder awareness raising – it’s not about the food – and said that he felt this was a simplistic and not entirely accurate statement. Food, he suggested, could be seen through different lenses of nutrition, health, emotion, identity and control, all of which could influence eating behaviour. During this whistlestop tour he covered everything from the Minnesota semi-starvation experiment – in which 36 healthy young men were fed 1800 calories a day for six months and developed symptoms we would usually associate with eating disorders, thus beginning research into the fact that malnutrition itself can perpetuate anorexia and bulimia independently of psychological processes – to the internal and external cues involved in feeling hungry, the expression of ones identity through channelling values and morals through food choices (e.g. becoming vegetarian), the government-sanctioned demonisation of certain food groups and so on.

The most interesting part of the talk for me was on the regulation of food intake. Professor Hill introduced this by showing an immensely detailed systems map relating to obesity, which included a staggering 108 known variables across 7 broad themes – biology, food production, food consumption, societal influences, individual psychology, individual activity and activity environment – which contributed to food intake and energy expenditure. This map really shows how complex the regulation of weight and intake is on biological, psychological and societal levels. It is not a simple issue and does not have a simple formula attached to address those who wish to influence their weight in either direction. The link to the map is here – I can’t find a version that lends itself well to zooming, but you can clearly see the seven themes and the interlocking paths which link them. The document it belongs to is this one, which is freely available online.

One influence on food intake Professor Hill particularly highlighted was the impact of actual or intended dieting/dietary restriction. This was in the “control” part of the talk, which I originally thought might refer to the fact that so many people think that eating disorders are *about* control, but was happily mistaken. What he was actually talking about was the physiology and psychology of control over food intake. He spoke of study after study which had shown how the dieting mindset actually leads to more episodes of (actual, not just perceived) over-eating, compared to non-restricted controls. This is especially true when the dieter eats food they had previously ruled as off-limits (the fuck it effect – I’ve had one biscuit so I’ll eat them all), if alcohol had been consumed, if other people around the dieter were eating high calorie foods freely or conversely if they were eating alone, if the dieter was experiencing a negative mood, and if they believed the foods they were eating were unhealthy or had a high calorie content. Professor Hill also outlined the mechanisms of cravings: dieters and restrictive eaters have both more cravings overall and more specific cravings for foods they have outlawed compared to non-dieters. When highly palatable foods are outlawed in this way they become more desirable, and if the person either finds this resistance very difficult or fails to maintain it they will often attribute the blame to a property of the food, thereby spawning hundreds of articles about the supposed addictive qualities of sugar, cake, biscuits, chocolate and so on. Hill related this to the well known mind game of trying not to think about a polar bear, and said that at least one study had taken the polar bear concept and applied it to instructing their participants not to think of chocolate – with the result that chocolate overwhelmingly became the subject of their thoughts.

This has also been researched in relation to children. Basically, findings are that children exposed to “pressuring” food rules (e.g. you must eat everything on your plate) are likely to eat less, and those exposed to “restrictive” food rules (you must not eat snacks between meals) are likely to eat more. Either way, imposing food rules either on yourself or others usually backfires in some way: either a large amount of time and energy will be required to adhere to the rules, or a restrict/binge/restrict pattern will emerge, in which a person strongly adheres to the rules for a period of time, becomes overwhelmed or exhausted and lets them slip for days/weeks/months, and after a certain further period of time will reapply the rules and begin the cycle again, ad infinitum. This pattern of behaviour in those not predisposed to anorexia usually leads to weight gain over time.

This is all really interesting in the context of both “normal” dieting, disordered eating and clinical eating disorders. Of course there are some people who, through some quirk of biology, never binge or deviate from their self-imposed rules during restrictive periods, but even this tells us something about the way they differ from the rest of the population biologically and/or psychologically. For the vast majority of the population it means simply this: diets don’t work. Formalised, rule-driven diets which prescribe a certain way of eating seem to make matters worse over time, establishing a chaotic pattern of restricting and overeating which leads to the body increasing its set point in response to deprivation, then hoarding every calorie it gets when the rules break down. From what I gather, dietary decisions made for ethical reasons are exempted from this, with the exception of when a person is fooling themselves over their reasons and actually just wants an excuse to restrict. I never craved meat in 17 years as a vegetarian and most of my ethically-driven vegetarian and vegan friends would say the same, but others I know who have stopped eating meat have struggled immensely when doing it for the “wrong” reasons.

I share Professor Hill’s outlook on this issue: that our society and government have worsened this problem by constantly harping on about certain foods or macronutrients (fats, carbs) being unhealthy, or even somehow immoral. For goodness sake, I feel like I’m committing an act of rebellion every time I eat cake in public. Not that it really affects me beyond finding it vaguely entertaining when people remark on my ability to eat cake and not gain a million pounds (I feel this is related to the fact that I actually allow myself cake, rather than freaking out about it and eating twenty cakes in a spurt of panic as I did as a teenager), but what about all the people who are too ashamed to eat anything but celery in public, only to go home and eat the entire contents of their fridge? Stigmatising various foods, inaccurately labelling them with good/bad judgements and even worse, attempting to shame larger people into losing weight just isn’t going to do a damn thing to help.

It is for this reason that from January 2010 I’ve been steadily learning about and applying to my own life the principles of Health At Every Size and intuitive eating. To begin with I found Health At Every Size a bit of an unfortunate name – after all, I hadn’t been healthy at my lowest weight so I couldn’t quite see the logic – but then I realised I hadn’t understood it correctly. What HAES actually means “is an approach to health that does not pursue the goal of a particular body weight, but rather concentrates on what health benefits and improvements can practically be achieved for individuals” (from the HAES UK FAQ, acronym heaven!). I would really recommend that anyone interested, either from the point of view of wanting to find out more for their own benefit OR because they are sceptical/unsure how it works, reads the first two sections in the FAQ linked: the basics and the justifications. HAES has a growing body of evidence behind it, not just established by the leading experts who have a vested interest in the subject (Linda Bacon is the woman in the know), but also gradually by other interested parties who want to test alternative approaches to weight issues as it becomes clear that dieting just makes things worse.

It’s no secret that I would really encourage people to look into intuitive eating in later stages of their recovery. I started teaching myself this way of eating and maintaining a healthy weight in February 2010, after a year of gaining weight and a month or so at my target. I could have micromanaged my weight forever, adjusting my calorie intake up or down depending on whether the number was trending up or down in general, but I was thoroughly sick of counting calories and obsessing over numbers, and wanted to at least try something different. I started slowly because eating disorders can rob bodies of sensitivity to hunger cues, and I couldn’t reliably identify feelings of hunger or fullness after twelve years of eating disorder. I believe I began by sticking to my general meal plan structure – breakfast, snack, lunch, snack, dinner, snack – and still aiming for the same sort of amounts at each, but without either weighing portions or counting the exact calorie totals. I was sure my weight would rocket (come on, I was a recovering anorexic, we’re all sure our weight will rocket!), but it didn’t, and so I extended my experiment for another week, and another. It held steady, and I have maintained my weight within six pounds (which is what constitutes one BMI point for me) without consciously trying to for the last two years now. I still have to break away from this approach slightly and make an effort to keep my intake up if I’m particularly stressed or ill, but otherwise I eat what I want, when I want, in the amounts I want, and those cues from my body mean I maintain a healthy weight.

One last question to Professor Hill from a lady in the middle of the auditorium: if there are so many different variables which influence our food intakes, from advertising to clock watching to biology gone wrong to stress, how can intuitive eating be a practical solution? Surely our bodies and minds are too confused to work out what they want? I can’t remember his answer fully because by that point I’d put my notebook away in anticipation of the dash for the complimentary cups of tea before the masses started queuing, but I vaguely remember it having a similar feel to my own thoughts on the matter. My answer, had the question been directed at me, would have been that once I was healthy I approached the problem on two fronts: by eating mindfully and retraining myself to be more sensitive to my internal cues, and by educating myself about HAES, intuitive eating and the like, slowly giving up my rules and revising my way of seeing food through the value-driven prisms of good/bad, right/wrong, healthy/unhealthy. It worked for me, and while I respect that different things will work for different people, it’s not just me and it’s not just people in recovery from anorexia. This approach is especially healing for people who have had problems with bingeing, chronic overeating or bulimia, and I would love for more people to give it a chance rather than immediately dismissing the idea on the basis that it can’t possibly work, that people need more rather than less control over their food intake, and/or that it’s too damn scary to contemplate. Actually, it gave me the most genuine and wonderful sense of control and freedom over my life, my body and my food intake, and it has taken all the fear out of eating.

I kind of wanted to kiss Professor Hill after his talk for being so well informed and making so much sense – but I wanted that cup of tea more ;)

June Alexander translates: Ed Says U Said.

This is the very first time in three years of blogging that I’ve accepted a request to promote/share something on my blog, and that is because the request came from my lovely friend June Alexander, who I met in Alexandria last year. June, an increasingly prolific author with an extended and inspiring experience of eating disorders and recovery, is writing a new book (or five) and wants contributions from as much of the online ED community as she can reach!

Here is the press release she emailed me:

Ever felt misunderstood? Share your experience in ED says U said

This new book will explain The Language of Eating Disorders

Co-authors: June Alexander and Cate Sangster

Jessica Kingsley Publishers (UK). Release: Early 2013

Eating disorders are about much more than food. Anorexia, bulimia and binge eating disorder invade every aspect of a person’s thinking, sense of self, behavior and relationships. The impact goes beyond the person with the eating disorder (commonly referred to as ‘ED’) – to everyone in the family and friendship circle. Frequently, family and friends – and even health professionals – have great difficulty knowing the right words to say.

International author June Alexander (A Girl Called Tim, My Kid is Back, A Collaborative Approach to Eating Disorders) and fellow eating disorder survivor Cate Sangster are writing ED says U said to help unravel this language confusion.

Eating disorder thoughts play havoc with communication throughout the course of the illness:

  • From the emergence of signs that something might be wrong;
  • During diagnosis and treatment; and
  • Through recovery.

Everybody involved can feel hurt, angry and exasperated at being misunderstood.

ED says U said will present dialogue snippets between eating disorder sufferers, their loved ones and healthcare providers – and explain how ED influences the interpretation.  Simple, well-intentioned conversation like “you are looking so well” can be wildly misunderstood in the mind of a person with an eating disorder– much to the dismay of the person who says it. ED says U said will break down the language barriers and offer suggestions on how to defuse and limit ED’s interference.

Examples of misunderstandings are invited from people who know best: those with experience. The authors seek examples of dialogue when the spoken word ‘is taken the wrong way’, triggering a communication breakdown. Each dialogue example should be limited to about 100 words. Submissions selected for inclusion in ED says U said will be published anonymously to maintain the privacy of all concerned.

Help ED says U said explain the language of eating disorders and facilitate recovery.

Email your contributions to: june@junealexander.com no later than April 14, 2012. For more information visit www.junealexander.com/2012/02/untwisting-eating-disorder-talk

June has posted elsewhere that she would particularly like examples from adults in relation to the effect their ED has had on communication with their partners, families and/or carers, and also from adult males with eating disorders, but will welcome all submissions. I asked her whether she was looking for well intentioned misunderstandings (i.e. you look so healthy…) or ignorant comments (think of the starving children in Africa!) and she replied “both!”.

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Bottled up

I’m freaking amazing at managing my anxiety these days. Over the last couple of weeks in particular it has become obvious just how skillful I’ve grown after more than twenty years of having to deal with the joys of various anxiety disorders. For instance, I went for some gynae tests (apologies to male readers!) earlier this week – nothing serious, just a check up. Even a couple of years ago such an experience would have left me clutching my vodka bottle in floods of tears trying to block flashbacks left, right and centre, but this time even the nurse remarked that I seemed calmer and more relaxed than the majority of her patients, particularly in light of my history with PTSD. Then at college yesterday I was observed by my tutor during skills, which usually makes me feel very anxious and sick and makes my mind go totally blank as to what I should be saying to my client. But my tutor specifically praised me for the way the session flowed, the fact that I seemed comfortable enough to let my personality and sense of humour into the interaction without detracting from the focus on the client (I think that was when I told her that I wanted to say “how does that make you feel” in a non-clichéd way, but couldn’t think of better phrasing, so was just going to ask it anyway!), and how relaxed I looked. This is a pattern: whenever I feel like a nervous wreck people are always telling me how confident and calm I seem, whether during my ED-related talks, in new social situations, in traditionally anxiety-provoking situations like exams and so on. There is pretty much nothing my anxiety can stop me from doing now either – although certain things might terrify me and make me feel like throwing up and/or running away, I will still do them, and I will remain outwardly very calm while doing so.

This is all great, because for the majority of my life my feelings, thoughts and behaviour were ruled by my anxiety. Whether it was the anorexia making me terrified to eat, the agoraphobia convincing me I’d die if I left the house, the PTSD getting me too scared to sleep without my light and television on or the panic disorder attempting to get rid of all my friends by having me hyperventilate at the least little trigger, everything I did was affected. Now the external circumstances of my life are barely affected at all, and I can do as I please without being restricted.

There’s just one problem with this, which is that at the moment I feel too emotionally overcontrolled in general. It’s not in my conscious control and I’m not blocking everything out – thinking of specific examples I felt irritation, love, sadness and excitement yesterday – but overall I feel a bit numb and blocked at the moment. I’m not sure if I really AM, or if this period of stability is just in such contrast to some of the drama of the last few years, or maybe even if I just wore all my emotions out at the start of the year and need some more time to recharge – but it’s unsettling me. Throughout most of my life I’ve struggled with feeling emotions at the appropriate level, usually being close to either extreme of completely overwhelmed or completely numb. As a teenager I responded to being almost perpetually overwhelmed by hurting myself or running away, but the older I get, the more I tend towards being in control of but not fully in contact with my emotions. When I was much younger it felt like bottled up emotions were the source of a lot of the anxiety: I would squish things down and down until they exploded in a panic attack, and then feel much better for a day or two. I also developed the unhelpful skill of channelling every feeling I had into some sort of fear. If it was a negative emotion I’d be scared it would never pass and I’d end up going crazy, and if it was a positive emotion I’d only feel it for five minutes before remembering that nothing good ever happened to me and that something terrible was bound to come along to ruin it very soon. Whatever I felt, it ended up making me anxious, and when I felt anxious I avoided things which I felt contributed to that anxiety, until my life was so empty and narrow I had nothing left to avoid except life itself, and I had a go at that a few times too. I’ve certainly made a huge amount of progress since then, but it’s still frustrating to feel not quite right and not know how to fix that.

I don’t know if the emotional life of most other people with mental health problems is so erratic, but I’d be willing to bet I’m not the only person who has experienced this. I no longer think I’m some sort of freak for not being able to cry at funerals or for presenting such a different picture on the outside to how I feel inside, but it still bugs me that I can’t quite get a handle on this. It’s not something I can micromanage or learn a handy technique for overcoming, which is of course another reason I find it particularly difficult in the first place, being a fundamentally pragmatic person (I wore this t-shirt to college yesterday. Everyone found it highly appropriate!).

I’m glad to be on top of the anxiety and I don’t want that to change, because this is the first time in my life since I was about five years old that I haven’t felt completely out of my depth and unable to cope with life. But I need to find some way of keeping this up alongside being able to identify and experience other emotions without freaking out and channelling them into anxiety, where I can manage them into non-existence. The word “headfuck” comes to mind…